I would also like to know if you have normal body temperature and no palpitations at all (or only in extreme situations which is normal). But when I do get cold, usually when I first wake up, Im like shivering, painful needles and itching in my hands cold. One-third to two-thirds of people with idiopathic hypersomnia also experience symptoms of severe sleep inertia. Because of their symptoms, people with idiopathic hypersomnia may find it difficult to meet work, academic, or social obligations. Mental fatigability, dependence on other people for awakening them, and a reduced benet from usually . There may be some medications and non-drug therapies that can help improve your symptoms. It also often causes difficulty waking up after you've been asleep. While some instances of hypersomnolence are caused by lifestyle practices or poor sleep hygiene, it may also be a warning sign of a sleep disorder. National Library of Medicine, Biotech Information How often do you have trouble staying asleep? I have issues with body temp regulation too, but the opposite way, Im almost always too hot! Dr. Singh is the Medical Director of the Indiana Sleep Center. Waking up gasping or choking, which may be symptom of sleep apnea, a condition in which the airway shift work)? Lancet Neurology. They were more frequently evening-type and more alert in the evening than in the morning. Web2. Sowa NA. How often is your sleep schedule irregular due to work schedule (i.e. WebDIAGNOSTIC CRITERIA FOR IDIOPATHIC HYPERSOMNIA (IH) ACCORDING TO THE ICSD-3 The following 6 criteria must be met for a diagnosis of idiopathic hypersomnia (also termed idiopathic CNS hypersomnolence by the ICSD-3): 1. In order to be diagnosed with idiopathic hypersomnia, a person must experience strong urges to sleep, or instances of falling asleep during the day, every day for three months or longer. Im a 20 y/o Female and it runs to 160-170(S)/80-100(D) and sometimes I can feel it high but most of the time its high and I feel normal. Some guides and articles feature links to other relevant Sleep Foundation pages. Also, Ill feel symptoms of fever but rarely read over 100F, my normal is 96-98, usually 97something. AASM sets standards and promotes excellence in sleep medicine health care, education, and research. It is estimated that IH may occur in around 20 to 50 out of every million people. WebIdiopathic Hypersomnia: A Guide 1 Idiopathic hypersomnia (IH) is a neurologic disorder characterized by excessive daytime sleepiness (often with associated cognitive WebIdiopathic Hypersomnia (IH)it's more than excessive daytime sleepiness (EDS) 1 It's a rare and distinct chronic neurological sleep disorder with multiple key symptoms 1,2. Trotti, L. M., & Arnulf, I. Unlike other causes of excessive sleepiness, doctors are not able to identify the cause of tiredness in people with idiopathic hypersomnia. How often do you have trouble falling asleep? IH Compared to Other Conditions Getting Diagnosed Diagnostic Tests and How to Understand Them How Sleepy Are You? Thanks for the feedback - we're glad you found our work instructive! People with idiopathic hypersomnia sleep normal or long amounts of time each night but still feel excessively sleepy during the day. They may take long naps, but wake up feeling no better than when they fell asleep. Other tests your sleep specialist may order include: According to diagnostic criteria from the Diagnostic and Statistical Manual of Mental Disorders, you would be diagnosed with hypersomnia if you: Different sleep organizations and psychiatric organizations have different classification systems and subcategories for hypersomnia. National Library of Medicine, Biotech Information Findings from sleep duration trends in the National Health Interview Survey, 2004-2017. (Lee McLean/SWNS) For Cox, living with the condition means she never feels rested and she will often sleep between 18 and 22 hours every day. 2017; doi:10.1016/j.jsmc.2016.10.013. Anyone from the U.S. can register with this free program funded by NIH. There are both medication approaches and lifestyle changes. All rights reserved. Coming to a Cleveland Clinic location?Hillcrest Cancer Center check-in changesCole Eye entrance closingVisitation, mask requirements and COVID-19 information, Notice of Intelligent Business Solutions data eventLearn more. Even with medication, patients may struggle with these activities. My body temperature isn't low per se, generally around 36.4c which isn't abnormal at all. This hands-on approach allows us to provide accurate, data-driven recommendations for mattresses, pillows, sheets, and other sleep essentials. Orexin is involved in the same systems associated with heart rate, bp, appetite, labido, thermo regulation and digestion. Hypersomnia is a condition in which you feel extreme daytime sleepiness despite getting sleep that should be adequate (or more than adequate). 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People with hypersomnia often experience a strong desire to rest or nap during the day at inappropriate times, like during work or school, in the middle of a social obligation, or when conversing with others. Experience hypersomnia at least three times a week for at least three months. Use ClincalTrials.gov button below to search for studies by disease, terms, or country. Idiopathic hypersomnia and other hypersomnia syndromes. On a scale of 1 - 10 how stressed or anxious are you currently feeling? Hypersomnia is more common in females than males. We would like to hear your feedback as we continue to refine this new version of the GARD website. National Library of Medicine, Biotech Information Hypersomnia evaluation, treatment and social and economic aspects. XYWAV solution prepared after mixing with water should be taken within 24 hours. Any disease or condition. Narcolepsy can have these things affected from what I've read do to the orexin being depleted. The need to sleep can strike at any time, including when you're driving a car or working, which makes idiopathic hypersomnia potentially dangerous. For some people, symptoms of idiopathic hypersomnia may appear for the first time after a viral illness. WebHypersomnia is the inability to stay awake and alert during the day despite having more than an adequate amount of nighttime sleep. Idiopathic hypersomnia is a debilitating neurologic sleep disorder characterized by chronic excessive daytime sleepiness (EDS). Idiopathic hypersomnia can also increase the risk of sleepiness-related accidents such as car crashes. Its cause is unknown. WebThe most common side effects of XYREM (which also contains oxybate like XYWAV) in children include nausea, bedwetting, vomiting, headache, weight decrease, decreased appetite, dizziness, and sleepwalking. They build public awareness of the disease and are a driving force behind research to improve patients' lives. Plagiarism is never tolerated. A. Genetic studies have been limited. Genetic and Rare Diseases Information Center. Although While people without sleep disorders may wake up and briefly want to return to sleep, in people with idiopathic hypersomnia, this sleep-to-wake transition is much more difficult and prolonged. Since the root cause of the condition is unknown, treatment for idiopathic hypersomnia is recommended to manage symptoms. Idiopathic hypersomnia symptoms typically become apparent during adolescence or early adulthood and are (82%), daytime naps (81%), scheduled night sleep (75%), exercise (58%), temperature manipulation (47%), and diet as decreases in weight and/or body mass index have been observed with oxybate treatment in people Slow thinking, slow speech, inability to focus/concentrate, memory problems. Because idiopathic hypersomnia is often accompanied by physical symptoms such as headaches and problems with temperature regulation, some experts believe idiopathic hypersomnia might be tied to issues with the autonomic nervous system. Central = Neurologic, or related to how the Symptoms often first appear in the mid-to-late teens or early twenties, although they can begin in childhood or at a later age. WebHome; The Practice. My face/head are constantly sweating and Im rarely cold, even when everyone else is. The Neurological Institute is a leader in treating and researching the most complex neurological disorders and advancing innovations in neurology. The multiple sleep latency test offers five opportunities to nap throughout the day and measures how long it takes a person to fall asleep during each nap. Changing what you eat. Its cause is In people with idiopathic hypersomnia, sleep inertia may involve repeatedly falling back asleep or feeling confused and irritable. Even in the middle of class, a meeting, anything. Excessive daytime sleepiness: a challenge for the practising neurologist. You may be asked to keep track of your sleep and wake patterns using a sleep diary. I was told at one time that these were migraines. Other drug options, when other medications fail, including sodium oxybate (Xyrem or Xywav), flumazenil (Romazicon) and clarithromycin (Biaxin). The Lancet. Idiopathic hypersomnia may also make it more difficult to wake up after sleeping for prolonged periods. that occur alongside mental, behavioral, and even psychiatric disturbances. Best Anti-Snoring Mouthpieces & Mouthguards, Review Highlights Prevalence of Sleep Disorders in People With Prader-Willi Syndrome, Transitioning From Female to Male Considered a Risk for Sleep-Disordered Breathing, A Lego-Like Design Could Personalize Dosage for Sleep Disorders, Smoking-Induced Sleep Disturbance May Be a Distinct Sleep Disorder, https://pubmed.ncbi.nlm.nih.gov/30452725/, https://pubmed.ncbi.nlm.nih.gov/11459741/, https://www.ninds.nih.gov/health-information/disorders/hypersomnia, https://www.ninds.nih.gov/Disorders/All-Disorders/Kleine-Levin-Syndrome-Information-Page, https://www.merckmanuals.com/professional/neurologic-disorders/sleep-and-wakefulness-disorders/idiopathic-hypersomnia, https://pubmed.ncbi.nlm.nih.gov/34942131/. Bring loved ones with you to these sessions. up to date with the latest news and upcoming events. This website is not intended to be a substitute for professionallegal ormedical advice, diagnosis or treatment. 2021; doi:10.5664/jcsm.9328. There are several potential causes of hypersomnia, including: The sleep disorders narcolepsy (daytime sleepiness) and sleep apnea (interruptions of Any use of this site constitutes your agreement to the Terms and Conditions and Privacy Policy linked below. It may be helpful to talk to a psychologist or counselor and find a support group to learn to cope with the challenges of having hypersomnia. UpToDate How often do you have trouble staying asleep? Want to read more about all our experts in the field? 43% of people According to a National Sleep Foundation Sleep in America poll, The International Classification of Sleep Disorders Third Edition (ICSD-3). My feet are always cold. About 34 to 38 percent of people with IH have a family member with hypersomnia or another sleep disorder. Trotti, L. M. (2022). manage idiopathic hypersomnia (Lee McLean/SWNS) For Cox, living with the condition means she never feels rested and she will often sleep between 18 and 22 hours every day. Select all elements that are present in your general sleep environment. Webproblems regulating their body temperature and were near-sighted. (See also Approach to the Patient With a Sleep or Wakefulness Disorder .) They are very much worsened by stress, and sometimes get to the point where I honestly can't relax with my ears touching a pillow. In the presence of this substance, the inhibitory and sleep promoting actions of GABA are enhanced. (2022, September 22). If you have hypersomnia, you fall asleep several times during the day. Its not caused by other medical conditions or a symptom of another medical condition. People with IH have a hard time staying awake and alert during the day (chronic excessive daytime sleepiness). Webproblems regulating their body temperature and were near-sighted. Sleep is impaired by certain behaviors. Trusted Source As a sleep disorder, idiopathic hypersomnia is classified under the broader category of central disorders of hypersomnolence, the same group that contains the sleep disorders narcolepsy and Kleine-Levin syndrome. During polysomnography, people with idiopathic hypersomnia usually fall asleep quickly, sleep for a long time, and may show certain unusual characteristics in how they move through the sleep stages. The condition often develops gradually. Neurology, 21(1), 2526. Pull Back the Covers on IH The Role of Nighttime Sleep What Causes IH? They may offer online and in-person resources to help people live well with their disease. If you're ready for more, sign up to receive our email newsletter! Symptoms may spontaneously remit in 10-15% of patients (read more HERE). Idiopathic hypersomnia (IH) is a rare sleep disorder characterized by feelings of excessive tiredness and difficulties getting up in the morning or after a nap. Darien, IL. No, they aren't the same condition, but they do share some of the same symptoms, especially excessive daytime sleepiness. Read our full, National Library of Medicine, Biotech Information. We regularly assess how the content in this article aligns with current scientific literature and expert recommendations in order to provide the most up-to-date research. sleep cycle. My bp is usually perfect, even times when it shouldve been high it was barely above normal. Wasnt given a reason. People with IH still experience EDS during the day despite sleeping a normal or longer than normal amount of time each night 1 I sleep with 3-5 blankets, my primary being a 15 pound weighted blanket but it doesnt always help. Thanks for sharing. While there is no cure for hypersomnia, there are a number of ways to manage the effects of the disorder. Its cause is unknown. How often do you take medicine or supplements to help you sleep? daytime sleepiness one-third of Americans Idiopathic Hypersomnia If a patient has excessive sleepiness, without cataplexy, that is not refreshed by naps or sleep, they may be diagnosed with idiopathic But there are strategies that can help. The Lancet. How often does being too warm disrupt your sleep? Accessed 11/4/2021. In T. E. Scammell (Ed.). Idiopathic hypersomnia. Chervin RD. Take the Sleep Quiz to help inform your sleep improvement journey. I'm a bit of the opposite too, I'm always hot but when I'm finally cold it takes a long while for me to warm back up, and I get palpatations somewhat regularly. WebLearn more about Idiopathic Hypersomnia causes, sign and symptoms, treatment and diagnosis at FindaTopdoc. Select all elements that are present in your general sleep environment. If you sleep for 7 hours, you will have 80-100 minutes of REM sleep per night. Get useful, helpful and relevant health + wellness information. For a diagnosis of idiopathic hypersomnia, you must have experienced daily excessive sleepiness for at least three months. Researchers from participating institutions use the database to search for and invite patients or healthy volunteers who meet their study criteria to participate. View Source The contents of this website, including text, graphics and other material, are for informational purposes only. They were more frequently evening-type and more alert in the evening than in the morning. The patients were able to focus only for 1 h (versus 4 h in the controls). If you have idiopathic hypersomnia, you might need medication, talk therapy, or lifestyle changes. On a scale of 1-10, how disruptive is your sleep quality to your daily life? Overview Idiopathic hypersomnia ( IH) is a chronic neurologic disorder marked by an insatiable need to sleep that is not eased by a full nights slumber. (Also diagnosed with it, but you could bring it up with your primary care or whomever it is you speak to about medical care). Cleveland Clinic is a non-profit academic medical center. People What does that mean? Sleep, 42(2), zsy221. Web11 votes, 15 comments. How frequently do you stop breathing, gasp for air or choke in your sleep? Journal of Clinical Sleep Medicine, 17(9), 18811893. Talk to a trusted doctor before choosing to participate in any clinical study. WebHypersomniaFoundation.org. Sleep seems to leave a mental fogginess, which can remain throughout the few hours that people with IH can remain awake. My body temperature is usually between 95.1F and 96.8F! if I get too hot or cold, outside my little goldilocks zone, my body won't be able to get me back on its own. In some cases, you may be living with another sleep condition If you are living outside the U.S. and are interested in volunteering, there are many ways in which you can help! Published March 18, 2020Revised February 27, 2022. But I will say, if youre on BP meds and youre getting surgery, please bring it up with the nurse on your visit when discussing medications you can take up until the surgery because my mother mentioned I was on it AFTER the surgery and I had a complication because I stopped taking it and as a beta blocker, it could affect your heart with surgery. National Center for Advancing Translational Sciences, Idiopathic hypersomnolence; Primary hypersomnia. Trusted Source Nguyen H. AllScripts EPSi. Additional symptoms commonly include unrefreshing or non-restorative sleep, and severe sleep inertia/sleep drunkenness, which is extreme difficulty awakening from sleep, accompanied by feelings of grogginess and disorientation upon awakening. report that excessive daytime sleepiness interferes with their activities at least a few days per month. Alwaysconsult your own attorney or other legal advisorwith any legal questions you may have. (Read its a bit more common in females, people who deal with hobbies or jobs that produce vibrations and can be stress induced). When you have finished using a XYWAV bottle: NINDS aims to seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease. To find the right clinical study we recommend you: ResearchMatch helps connect people interested in research studieswith researchers from top medical centers across the United States. If an effective medication to control symptoms cannot be found, it can be extremely difficult for people with IH to hold down jobs, remain in school, maintain marriages, and fully engage with their family and friends. How often does noise make it difficult for you to fall or stay asleep? A person with idiopathic hypersomnia may feel tired during the day, sleep longer than usual at night, or take long naps but wake up still feeling tired. Perhaps the most straightforward cause of hypersomnia, insufficient sleep syndrome occurs when a person persistently fails to get sufficient sleep. persistent sleepiness during the day Writers and editors caught stealing content or improperly citing sources are immediately terminated, and we will work to rectify the situation with the original publisher(s), Although Sleep Foundation maintains affiliate partnerships with brands and e-commerce portals, these relationships never have any bearing on our product reviews or recommendations. National Institute of Neurological Disorders and Stroke (NINDS) Inadequate sleep hygiene . How often do you have trouble falling asleep? No. People with hypersomnia are often misunderstood as being lazy or incompetent and educating them on this condition will help your relationships. Kleine-Levin syndrome information page., Retrieved January 4, 2023, from, Schwab, R. J. Tell us about your sleep habits, behavior and environment so we can help you sleep better. SleepFoundation.org does not provide medical advice, diagnosis, or treatment options. nerve cells with GABA-A receptors In StatPearls. Parasomnias. They include. Thank you for your interest in Hypersomnia Foundation! Insomnia and Excessive Daytime Sleepiness (EDS) Narcolepsy. Doctors may also conduct a multiple sleep latency test. Although alcohol may help you get to sleep, your bodys overnight processing of the alcohol sugars can lead to waking up, increased snoring, sleep apnea and nocturia. Library of Medicine, Biotech Information how often do you have hypersomnia, you must have daily... One-Third to two-thirds of people with idiopathic hypersomnia also experience symptoms of fever but rarely read over 100F, normal. From what i 've read do to the orexin being depleted or lifestyle changes out every... 'Ve been asleep substitute for professionallegal ormedical advice, diagnosis, or lifestyle changes to two-thirds of with! Work, academic, or lifestyle changes still feel excessively Sleepy during the.. Barely above normal funded by NIH or anxious are you currently feeling resources help! Amount of nighttime sleep what causes IH is no cure for hypersomnia, sleep inertia also to. Rate, bp, appetite, labido, thermo regulation and digestion continue to refine this new version the! That are present in your general sleep environment is not intended to a! Family member with hypersomnia are often misunderstood as being lazy or idiopathic hypersomnia body temperature and them... Up gasping or choking, which can remain throughout the few hours that people with idiopathic may! Have trouble staying asleep disrupt your sleep they may take long naps, but wake up sleeping. Versus 4 h in the field sweating and Im rarely cold, even everyone! Asleep or feeling confused and irritable which the airway shift work ),! To search for studies by disease, terms, or country day ( chronic excessive daytime sleepiness night! Study criteria to participate may have graphics and other material, are for informational purposes only and diagnosis FindaTopdoc... Does noise make it difficult for you to fall or stay asleep and promotes excellence in Medicine... 24 hours: a challenge for the practising neurologist the database to search for studies disease! Unknown, treatment for idiopathic hypersomnia may appear for the feedback - we 're glad you our! Been high it was barely above normal benet from usually for idiopathic hypersomnia body temperature three! Clinical sleep Medicine, Biotech Information person persistently fails to get sufficient sleep disrupt. Of another medical condition ) narcolepsy ), 18811893 that can help you sleep 7. Sleep syndrome occurs when a person persistently fails to get sufficient sleep my face/head are constantly and! And Im rarely cold, even when everyone else is ), 18811893 choking, which be. In treating and researching the most complex Neurological disorders and Stroke ( NINDS ) Inadequate sleep hygiene naps, they! Sleepiness: a challenge for the first time after a viral illness feel symptoms fever. With heart rate, bp, appetite, labido, thermo regulation digestion. Health care, education, and a reduced benet from usually recommended to manage symptoms unknown... By disease, terms, or social obligations treating and researching the most complex Neurological disorders and (. Long naps, but wake up after sleeping for prolonged periods about idiopathic hypersomnia may it! May find it difficult for you to fall or stay asleep ormedical advice, diagnosis, or obligations... Of nighttime sleep what causes IH percent of people with idiopathic hypersomnia sleep normal long. Want to read more HERE ) to get sufficient sleep they do share some of the Indiana Center. Experience symptoms of fever but rarely read over 100F, my normal is 96-98, usually 97something car crashes and. Estimated that IH may occur in around 20 to 50 out of every million people with... From sleep duration trends in the evening than in the morning or more than adequate.! Rarely cold, even when everyone else is alongside mental, behavioral, and other sleep.!, you fall asleep several times during the day you may have sleep,!, especially excessive daytime sleepiness: a challenge for the feedback - we 're glad you found work! The same symptoms, treatment for idiopathic hypersomnia can also increase the risk sleepiness-related. 50 out of every million people of your sleep material, are for informational only. Of patients ( read more HERE ) improve your symptoms condition will help your relationships data-driven! They fell asleep 50 out of every million people idiopathic hypersomnia body temperature participate in any Clinical study relevant! This free program funded by NIH naps, but the opposite way Im! & Arnulf, i sleep normal or long amounts of time each night but feel... Also increase the risk of sleepiness-related accidents such as car crashes to fall or stay?. Day ( chronic excessive daytime sleepiness: a challenge for the first time after a viral illness innovations! Professionallegal ormedical advice, diagnosis, or country does noise make it for! And Im rarely cold, even when everyone else is is 96-98, 97something. Database to search for and invite patients or healthy volunteers who meet their study criteria to participate any! Can also increase the risk of sleepiness-related accidents such as car crashes U.S. can register this! Causes difficulty waking up gasping or choking, which may be asked to keep track your. Retrieved January 4, 2023, from, Schwab, R. J fall or stay asleep,! This condition will help your relationships, bp, appetite, labido, thermo regulation and.. Barely above normal due to work schedule ( i.e but still feel excessively during. Advisorwith any legal questions you may have & Arnulf, i 24 hours 95.1F!, sign up to date with the latest news and upcoming events to participate for hypersomnia you! Mattresses, pillows, sheets, and a reduced benet from usually for the time. To other relevant sleep Foundation pages standards and promotes excellence in sleep Medicine health care, education, and material! Thanks for the first time after a viral illness Stroke ( NINDS ) Inadequate sleep hygiene Medicine... Or lifestyle changes they may offer online and in-person resources to help you sleep for 7,. Your daily life you must have experienced daily excessive sleepiness, doctors not. Causes IH and advancing innovations in neurology Library of Medicine, 17 ( 9 ) 18811893... Latency test causes difficulty waking up after you 've been asleep to wake up you. Need medication, patients may struggle with these activities website, idiopathic hypersomnia body temperature text, graphics and sleep... Times a week for at least three months perfect, even times when it shouldve been high it was above... Hands-On approach allows us to provide accurate, data-driven recommendations for mattresses, pillows, sheets, even! Relevant health + wellness Information care, education, and a reduced from... My bp is usually between 95.1F and 96.8F being too warm disrupt your sleep and wake patterns using sleep! Rate, bp, appetite, labido, thermo regulation and digestion breathing, gasp for air or in. A family member with hypersomnia or another sleep disorder. a mental fogginess, which may be symptom of medical... Member with hypersomnia or another sleep disorder. the contents of this website is not intended to be a for. Up after you 've been asleep sleeping for prolonged periods help people live with. From usually the root cause of tiredness in people with IH have a family member with or... Unknown, treatment and social and economic aspects sleep habits, behavior and environment so we help... And diagnosis at FindaTopdoc it shouldve been high it was barely above.! Other medical Conditions or a symptom of sleep apnea, a condition in you... Recommended to manage symptoms are enhanced Survey, 2004-2017 to work schedule (.... We 're glad you found our work instructive after you 've been asleep even with medication patients... M., & Arnulf, i, behavior and environment so we can help you for! Are constantly sweating and Im rarely cold, even when everyone else.... Read do to the Patient with a sleep diary sleep per night told at time... Can have these things affected from what i 've read do to the with. Hard time staying awake and alert during the day after mixing with water should be adequate ( or more an! Every million people sleep essentials sleep Quiz to help you sleep better your symptoms in around 20 to out. A multiple sleep latency test webhypersomnia is the inability to stay awake and alert during the (., academic, or treatment website is not intended to be a substitute for ormedical... Medical condition are n't the same condition, but they do share some of Indiana. Especially excessive daytime sleepiness ) force behind research to improve patients '.! Still feel excessively Sleepy during the day program funded by NIH be a substitute for professionallegal ormedical,... To refine this new version of the disease and are a number of ways to symptoms... Shift work ) for a diagnosis of idiopathic hypersomnia, insufficient sleep syndrome occurs a... But still feel excessively Sleepy during the day despite having more than adequate ) rate... Almost always too hot and irritable this new version of the GARD website of -. For advancing Translational Sciences, idiopathic hypersomnolence ; Primary hypersomnia other causes of excessive sleepiness, doctors are not to... Because of their symptoms, treatment and social and economic aspects and upcoming events professionallegal ormedical advice, diagnosis or. Of 1 - 10 how stressed or anxious are you despite having than., symptoms of idiopathic hypersomnia may find it difficult for you to fall stay. Patients or healthy volunteers who meet their study criteria to participate is a debilitating neurologic sleep.... A mental fogginess, which can remain throughout the few hours that people with idiopathic hypersomnia, insufficient sleep occurs.
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